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Familial Dysautonomia United Kingdom (FDUK) is a UK charity, set up over 40 years ago to help support sufferers of FD and their families.

The charity strives to raise awareness of the condition in the community. Its aim is also to raise money to fund individual medical needs and requirements, as well as pay for specialised doctors to come to London to hold clinics to assess the FD sufferers as well as guide UK doctors in the specialised expertise.

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The Society supports medial research and clinical care by:

  • Helping FD children and their families

  • Helping to train UK specialists and therapists in the treatment of dysautonomia

  • Helping to fund research into FD by eminent scientists around the world

  • Bringing the top specialists from abroad to the UK


The Society also provides a continual flow of information to members, parents, professionals and anyone requesting medical, educational professional information on FD.

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